Leftover Medication & Lessons Learned

So friends, one of the lessons I learned from our IVF cycle is that some doctors recommend that you order all of your medications at once. I suppose that there are benefits to having all of your medication delivered at once. With a box of expensive drugs you get to take the money shot photo of all your baby making medications laid out on display, and I imagine that there is less worry about a freak snowstorm (in southern california?) shutting down the pharmacy and preventing delivery of a refill order mid cycle.

The downside however is that your medication protocol changes over the course of your cycle, depending on how you are responding to the medication. In my case, my dosages were reduced at every monitoring visit, which meant that at the end of my cycle I am sitting on thousands of dollars of leftover medication.

I shared this with my Doctor after our cycle and he explained that it is illegal to sell prescription medication, however I was welcome to donate it back to the clinic and they will donate it to future patients. I might have been open to this recommendation, except that I wasn't offered any donated medication for our cycle, and seriously I am sitting on thousands of dollars of unused medication. If I was going to make a thousand dollar donation, it would probably be to a very different cause and qualify me for a donation tax credit.

At least I can share this lesson learned with all of you who have yet to order your box of medication. And for our next cycle, when we are ready to do this again, I will most definitely remember to order a minimum amount of medication knowing that we can order additional medication as needed via overnight delivery throughout the cycle.

I am feeling like I want to get these meds out of our house, but at the same time, if I can't sell them, then I might as well keep them around. I'd hate to give them away for free now and have something awful happen that might require us to purchase more. All but the progesterone in oil have expiration dates that would let me hang on until December. Then in December, when I am holding our miracle baby, I might feel better about giving them away.

I keep wondering if there is a way to 'trade' these medications - you know, like a barter of sorts? Any suggestions?

In the meantime, check out my pharmacy of extra medication...

Menopur 2 x 75 iu  (exp 7/2012)

Vagifem estradiol vaginal tablet 10 mcg, #2, (exp 7/2013)

Zarah Tablet (Yasmin generic), 12 active pills, (exp 10/2012)

Endometrin progesterone vaginal insert 100mg, #16, (exp 8/2012)

Progesterone in Oil (Ethyl Oleate) 50 mg/ml, 10ml (exp 10/05/2011) - still sealed

Progesterone in Oil (Ethyl Oleate) 50 mg/ml, 10ml (exp 10/05/2011) - half used, no longer sealed

Ovidrel prefilled 250 mcg syringe refrigerated, #1, (exp 7/2012)

Follistem AQ Cartridge 900 iu, two full cartridges!, (exp 3/2013)

Follistem pen with partially filled cartridge (exp 3/2013)


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16 comments :

Kanis said...

Wow. You do have a lot of left over medication! I learned my lesson from my first IVF cycle when I was left with a box of Puregon. This time I simply purchased 3 days at a time. Then when I got closer to my trigger date, I just bought a day at a time. For this cycle, I have nothing left. Hopefully I'll never have buy any meds again!

Sarah said...

You've got yourself a little fertility pharmacy there :) Here in NY I guess we like to be rebels. My clinic has donated some to me, and friends have either donated meds to me or gave me a really good deal on them. I always thought it's probably illegal, but then again infertility should be illegal...non-existent...so none of us would have to go through this :) If we are blessed with a miracle today, Im sure Ill hold onto any meds I have until Im out of the woods and then donate it...

Lauren said...

I like I had about 15 75IU vials of Bravelle left over after I got pregnant. I didn't know what to do either, and ended up sitting on them until they expired last October. Sigh.

You're not the first person I have heard whose clinic told them they could donate the meds to them, but who wasn't offered donated meds when THEY did their cycle. I wonder who they DO offer them to, then.

Kakunaa said...

We lucked out in that my meds stayed at the same dosages. Nothing worthwhile left over except maybe some PIO. Hang til December and then maybe donate in bloggy world?

Ruth said...

Wow that's a lot of leftover meds!!! I can't believe your doc expects you to just "donate" all that back, especially considering the Follistim! That stuff is sooooo dang expensive. My RE just had us order the meds we needed for in between appts. Before my ER, he had us order extra meds for just one more night in case he wanted to have us stim for 1 more day, but he offered to actually buy it back from us. Maybe you'll be able to *illegally* donate to friends like others suggested?

Anonymous said...

This happened to me with my middle cycle when they ordered me enough meds for oh, about TWO cycles- luckily that cycle worked, the downside is all the meds expired before our most recent cycle (except one vial of follistim). It is hard to know what to do, DH refused to let me entertain the idea of selling/gifting it, I probably could have donated it to the clinic but they just use it for "education" that seems like a waste. This time around I was much more stingy in my ordering and only had a partial follistim left, like you said- something to do different next time.
Congrats on your pregnancy!
ICLW #60

Marissa said...

You might want to ask your clinic what circumstances prompt them to donate meds. My clinic didn't give us any our first (cancelled)cycle, but as things went on, we got more and more. Sort of like a bonus prize for failed cycles--here's 8 vials of Bravelle and a trigger! Here, have an antagonist shot!

I dunno, I both got and gifted (small, since I used nearly everything) from my clinic and illegally from friends. There are also websites where people buy and sell IVF drugs, but that's illegal (as is gifting) and doesn't offer any protection, so I never purchased from them.

MoonNStarMommy said...

Ugh ... I hope you figure out something to do with it ... and maybe you will feel different once you have your miracle in your arms. I never got as far as injections - so I have no words of advice... :(

Congrats on your pregnancy :)

Happy ICLW from #86 :D

Diana said...

Hey there! That's alot of medicine chica! and boo for ur clinic not being able to compensate u somehow. Ugh... Hold on while I scream.... WHY IS INFERTILITY SOOOO EXPENSIVE!?!?!?

.... Ahhhh. Ok I feel better :)

Sorry hun.. Hopefully ull find a good place for them :/
Hope ur pregnancy is going well!!! :) I'm sure u can't wait til December!!!!! :)

Trinity said...

We had no insurance coverage for IF tx or for meds, and my clinic gave me some donated meds. I also had three different bloggers who gave me some of their leftover medication (all 3 of whom contacted me without prompting and asked me if I wanted them, all 3 well known and trusted in our community), and I accepted the meds and used them during my cycle. If you had asked me before IF if I would be accepting drugs from people I'd never met in real life, I would have laughed in your face. Desperate, expensive times call for unexpected measures, I guess. I held on to all of my meds until my baby was born, too. And then I donated the unexpired stuff to another IFer. It felt like poetic justice, pay it forward style.

Good luck finding a happy home for your meds! :)

Anonymous said...

Wow, that is a lot of medicine. I don't have any experience, but I do know a few people who have done what Trinity described.

Mindy K said...

try online message boards or facebook pages. i'm on a few that are a great resource for trading left over meds.

Kristin said...

I have heard of people donating to other infertiles directly but, due to federal regulations, you can't advertise publicly. Good luck with both your pregnancy and with figuring out what to do with the meds.

ICLW #19

Kerrik said...

That is awful about the leftover meds. I had some too, but not nearly so much. 2 900 iu cartridges of Follistem, really!?!

My clinic offered us some donated meds - Lupron specifically - since we were entirely self-pay, though the really expensive stuff was the Follistem. I think you should try to sell it.

Kristen said...

Hi from ICLW!
Congrats on your pregnancy! :)
That sucks about the meds. I'm going to have some leftover from this cycle too I think, but not nearly as much as you. I personally would get them out of the house. Again, I have way less money involved than you, but I think I'm going to donate mine to a fellow IF blogger...

Jessica White said...

Our RE did that to us this last cycle to: They called in our injectibles order, and it was almost $3000....a heck of a lot more than I anticipated. They had me ordering 40 units of bravelle...I used 8 the prior cycle. I called and changed the order...which ended up being $650. Our RE did say that we could donate the meds and get a tax deductible form or something, but I never did...I had 2 vials of bravelle.

In the past I've donated them to others, and they usually paid a lot more for "shipping" than it cost, not as much as the meds, but something more. Perhaps someone would be willing to do that.

Thank you for your comments on my blog :-)

 

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